May is Guillain-Barre Awareness Month
I have a fear of hospitals. I really hate them actually. I don’t know why, there are several nurses in my family including my own mother. For some reason they have always grossed/creeped me out. I always told myself that I wouldn’t have to worry about being in the hospital until I was having my first baby. So I have until I’m like at least 30 ; )
But in December 2010 I started experiencing tingling and weakness in my feet and legs. I assumed it was related to exercise but when it got worse I got scared. Diabetes runs in my family and I was terrified that’s what it was (the other symptoms weren’t there though). It took almost 3 weeks for me to get diagnosed by a neurologist with guillain-barre. I wish I had a picture of my face when he told me that I had to check in to a hospital for 5 days.
Most of the people who read this blog have heard the story plenty of times so I will skip to the happy part…I survived! I was so very lucky. I did not have to be put on a ventilator (about 30% of patients do) and I do not suffer from any residual paralysis or nerve pain.
However, I do suffer from other residual effects. It is all I can attribute these things to. I never had them before I got sick. Every once in a while, I have bouts of light headedness, fatigue, and blood pressure spikes which cause headaches. I do not know what triggers them yet and I have no idea how long I will be affected.
This week I have been having headaches that feel exactly like they did when I was sick. I am grumpy because of this as well as the problem with my knee. HOWEVER, I cannot complain about these things when there are so many whose lives were ruined by this rare disease. I am so lucky.
I had the blues
because I had no shoes
until upon the street,
I met a man who had no feet.